Scottish Multiple Sclerosis Register
 

The Scottish MS Register
For all general enquiries please contact us
via email
or Tel: 0131 275 6105


Dataset

All personal details will be held in accordance with Public Health Scotland data protection guidelines.

https://www.publichealthscotland.scot/our-privacy-notice/ - (external link)

The information is collected by the hospital and is collated by Public Health Scotland (PHS). PHS has well established systems to protect the privacy of data held on patients and staff.

The General Data Protection Regulation (GDPR), the Data Protection Act 2018, and Public Benefit and Privacy Panel for Health & Social Care (PBPP) Guidelines.  No identifiable information will be passed to any individual or organisation out with the National Health Service.

Type of information included in MS Register

Demographic information

Family history of MS

Date of first symptoms

Referrals

MS nurse patient involvement after initial diagnosis of MS

Types of investigation

Diagnosis

Type of information not included in MS Register

Co-morbidity information

Investigation results

Outcome measure information

Vitamin D information

For full dataset information please refer to the proforma and definitions documents here