The Scottish MS Register
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Percentage of Multiple Sclerosis Registery patients (diagnosed since 2010) who have received their first dose of a COVID-19 vaccine
Map based on Longitude (generated) and Latitude (generated). Colour shows details about GroupColour. Details are shown for Health Board. The view is filtered on Health Board, which keeps 14 of 14 members.
Notes:
Multiple Sclerosis and Vaccine databases are both live datasets. Data extracted on 12 June 2021.
The Scottish Multiple Sclerosis Register National Report (external link) is published on 25 July 2023. This year's report is published on the Public Health Scotland website and shows figures from January to December 2022.
Multiple Sclerosis (MS) is a condition of the central nervous system. It is the most common disabling neurological disease among young adults and affects around 100,000 people in the UK. MS is most often diagnosed in people between the ages of 20 and 40, and women are almost twice as likely to develop it as men.
At present, there is limited information on the number of people affected in Scotland. There is a need to provide baseline data to understand the most basic epidemiology of the condition in Scotland and so provide an informed basis for evaluating the quality of care for people affected by MS. To achieve this an incidence register of MS in Scotland was launched on 1st January 2010.
A proforma for collecting the information was developed by the Scottish MS Register steering group, with input from NHS Quality Improvement Scotland and the Chief Scientist Office. The data collection was then piloted twice and has been refined accordingly.
By analysing patient data, as well as feedback from clinicians, we have been able to design a national data collection tool to collate all new cases of MS in Scotland from 1st January 2010. As well as collecting data about the number of people with MS in Scotland each year, the register will examine patient management during the patient journey from referral to diagnosis. It is hoped that this will be a stepping-stone to further audit and research projects.
The Scottish Multiple Sclerosis Register (SMSR) aims to improve the care of people with multiple sclerosis (MS) by the use of systematic, comprehensive audit of their diagnosis and early management providing feedback through regular reporting and annual review of performance against national neurological standards.
Inclusion
People who are newly diagnosed with multiple sclerosis from 01.01.2010 as defined by Poser 1983 and the Revised McDonald Criteria 2017.
Exclusion
Possible multiple sclerosis
Clinically isolated syndrome