The SMSR has an established Patient Reference Group which was set up by the Scottish MS Society prior to the establishment of the SMSR to ensure that the views of patients and their carers were influential in the formation of the SMSR.

The Patient Reference Group comprises a group of people with a confirmed diagnosis of MS drawn from various parts of Scotland. Some members attend with their carers whose views also contribute to the discussions. The Patient Reference Group ensures that the Register represents a wide range of views and concerns of people with MS and their carers and is a forum where its members can participate and guide the SMSR to focus on what matters to them.

The chair of the Patient Reference Group is also a member of the SMSR Steering Group and acts, with the Clinical Co-ordinator, as an interface between the two groups.

Chair
(To be confirmed)

Patient Reference Group Terms of Reference
Terms of Reference	Download (46 kb)
Minutes
26th May 2016
23rd February 2016
3rd November 2015
26th May 2015
Patient Information
Patient Information Leaflet	Download (197 Kb)